Cesar Chelala
A physician and writer

Meeting the Needs of Children with Disabilities

Between 500 and 600 million people worldwide are living with a disability.  According to statistics from the World Health Organization (WHO), approximately 10% of children and youth in the world (about 200 million) have a disability.

There are many causes of disabilities in children. These include genetic factors, conditions related to pregnancy or childbirth, and those affecting newborns. In addition, there are those conditions related to the different types of violence experienced by children, particularly in times of war.

In young children, the deficiency of certain minerals such as iodine affects their mental development and the same deficiency in the mothers during pregnancy can result in varying degrees of intellectual disabilities in their infants.

A wide range of toxins in the environment has a negative effect on the physical and mental development of children. It is the case of lead, pesticides and certain plastics. Even children toys have been found to contain toxic elements. In a study carried out in six Eastern European and Asian countries researchers found toxic metals in 29 percent of the toys studied.

Children are more vulnerable than adults to the negative effects of environmental toxins.  Because children have a higher metabolic rate and key organs are still developing rapidly during childhood and the kidney and liver are not fully developed, they cannot eliminate toxins as well as adults do.

Increasingly, the continuous exposure to environmental toxins is considered an important cause of disability. Developing countries particularly suffer these problems, because many toxic substances are less regulated than in industrialized countries. In addition, certain disabilities in children are the result of the mother’s exposure to toxic substances such as alcohol, nicotine and mercury during pregnancy.

Malnutrition is a common cause of disability and is also a direct result of poverty.  This is one important reason to address poverty affecting large numbers of children. Malnourished children may develop learning disabilities; in addition, they may become blind or develop hearing loss.

Poverty is both a cause and a consequence of disability. The costs of caring for disabled children are very high, particularly for mothers who are unable to work and contribute their income to the family resources.

Disabilities in children often affect their educational possibilities. In some developing countries, up to ninety percent of children with disabilities do not attend school, limiting their chances for better education and future employment.

All these situations pose a number of challenges about how to better cope with children with disabilities. Disability experts have concluded that early intervention can demonstrably improve children affected with disabilities.

Many actions to address the basic needs of children with disabilities do not require a complicated infrastructure or big expenses.  They can be carried out by taking advantage of community resources and existing infrastructure.

A specific form of local support is the implementation of programs designed and carried out by local communities. This concept was developed by the World Health Organization in the late 1970s and early 1980s. It stresses the rehabilitation, equalization of opportunities, poverty reduction and social inclusion for all children and adults. All members of the community benefit and social and community leaders learn to work together.

Fortunately, de-institutionalization of children with disabilities has become the norm.  In order for it to be truly effective, however, it must be accompanied by the development of suitable community structures for the care and education of children with disabilities. Educational institutions should include children with disabilities in regular education programs and should eliminate their segregation.

It is extremely important to improve the situation not only for disabled children, but also to address the needs of the family environment. Siblings, for example, may resent the extra attention given to children with disabilities. For parents, this kind of situations poses enormous physical and emotional demands for people already living in very stressful situations.

These considerations underscore the need for a holistic approach to children with disabilities. This involves developing national policies that promote opportunities for disabled children and properly allocating resources to meet their needs. In addition, it is important to develop actions to eliminate stigma, which is one of the most critical barriers to solving problems affecting these children.

Addressing the needs of children with disabilities is not only a duty that we as a society must embrace.  It is also an expression of the compassion and intelligence we need to create a better society.

Dr. César Chelala is an international public health consultant and winner of an Overseas Press Club of America award and a national journalism award from Argentina.

About the Author
César Chelala is a physician and writer born in Argentina and living in the U.S. He wrote for leading newspapers all over the world and for the main medical journals, among them The New York Times, The Washington Post, The Wall Street Journal, The Japan Times, The China Daily, The Moscow Times, The International Herald Tribune, Le Monde Diplomatique, Harvard International Review, The Journal of the American Medical Association, The Lancet, Annals of Internal Medicine, and The British Medical Journal. He is a co-winner of an Overseas Press Club of America award and two national journalism awards from Argentina.
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